Medical Stuff with Austin

So update on Austin's medical issues:


For those who do not know, Austin has been diagnosed with Spastic Quadriplegic Cerebral Palsy, HIE, Laryngomolacia, Tracheomalacia, high muscle tone, global delays, failure to thrive, G/J tube placement, Plyoric Stenosis, Complex Epilepsy (including Infantile Spasms), GERD and a few other medical issues. Sometimes typing them all up I always miss something.


With Austin's complex medical history there is always something that could come up along the way. Austin cannot take anything my mouth because he aspirates (could go down to his lungs) since he cannot protect his airway. So with him throwing up he can aspirate even more! So back on April 18th we went into a scope so we could do the surgery called a Nissen (to help with the throwing up!) and he came out of it with a temp of 104.5 and oxygen level of 85%. Even with all his medical issues he has ALWAYS been a 100% or 99% for oxygen level! 


I didn't get to see my son until 2.5 hours after they had promised. I was worried, confused, and sadden when they had told me. This was the second time he had a hard time coming off of anesthesia so it got me worried about him. I was in tears as they were running test after test on my poor little baby. We found out after getting admitted he had gotten pneumonia and RSV. Normally, if you have RSV it can cause pneumonia but after a lot of test they found out that it was bacterial pneumonia. SO he was put on antibiotics for that and of course had been on oxygen. He stayed in the hospital for 5 days. So with big aspirations it can cause pneumonia, it's part of his life we have to over come and keep trying to make him as healthy as we can. 


So we got a referral in the hospital for ENT (ear, nose, and throat doctor) to come visit. Things looked good on their part but on the Pulmonary aspect things didn't look so hot. Since he cannot protect his air way we have to talk with them to make sure that we do all we can to help with the small aspirations so perhaps we can prevent pneumonia as much as we can. So the pulmonary doctor asked about family history of breathing issues which was a laugh since we have family history of emphysema. 


So at the end she had decided on an steroid inhaler given, 2 puffs, twice a day for him. This will help protect his lungs and in the long term keep him out of the hospital. So let's help it works. On other news since he got out of the hospital April 22nd he had pooped 7/8 times in a month so we went into the hospital again for a 1 day stay. Which he was so backed up it was coming out of his g tube site.:( Poor guy! He can't win. SO now he's on medicine to make sure he stays regular. It's a pain in the butt to give to him but it's worth it. The clean up does suck though! So there is an update on Austin. We got more medical appointments coming up including physical medicine, neuro, and ophthalmology next week so THAT will be an interesting time that I will update you guys all up. Next week we are schedule for 7 appointments in 1 week so I'm not looking forward to it!